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Jun 19

Zachatie -The Reproductive Health Day in Bulgaria

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In 2006, Bulgarian patient association Zachatie organized the first national infertility awareness event, called The Reproductive Health Day. This event later became the big traditional annual event of the association, held each year in a different Bulgarian town. It’s a unique meeting of patients and leading infertility experts.
Each year features a different main topic for discussion and media coverage. During the open info sessions, leading medical professionals present the latest news in the reproductive medicine, assisted reproduction and fertility evaluation and treatment. Each presentation is followed by an open discussion with Q&A. An important part of this event are the free consultations with the leading reproductive health professionals for hundreds of infertile patients. New feature this year was the highly successful Fertility Expo Alley, representing all major IVF clinics and providing information at a glance. For the last few years, thanks to their charity campaign, Zachatie Association is able to provide several vouchers for financial support of diagnostic and treatment procedures for infertility couples, visiting the event.
During its 12 years’ history, around 3,000 people have benefited from free consultations and medical information, provided through Reproductive Health Day.

The History of the Reproductive Health Day
2006 – “First Reproductive Health day”, Pleven
2007 – “Infertility and Demographic Collapse”, Sofia
2008 – “A Heart under My Heart”, Stara Zagora
2009 – “A Sea of Children Smiles”, Burgas
2010 – “A Look into Male Infertility”, Plovdiv
2011 – “ First Steps: Diagnostics & Prophylaxis”, Varna
2012 – “Give a Hand: Society and Infertility”, Haskovo
2013 – “To Donate Life”, Russe
2014 – “10 Years Zachatie Association”, Sofia
2015 – “The Long Way: Unexplained Infertility”, Bansko
2016 –“New Ways Towards the Baby”, Stara Zagora
2017 –“New Horizons to the Dream”, Burgas

 
Category: Fertility Europe
 
Jun 05

DISCRIMINATION IN INFERTILITY TREATMENT – YOUR STORIES

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Ms Norica Nicolai MEP asked to send her stories of discrimination in access to ART in your countries. We are collecting the stories at the moment to be sent all together by 20th June. The stories can be anonymous, but you are very welcome to provide your contact details, if you like.
Below is the example, how the description may look, but, please, send us stories from your country, even if they are less detailed.
Please, send them to office@fertilityeurope.eu

Example 1:
Juliette 39 & Joachim 39 in Paris

Situation : Married, 1 child from a first marriage, 5 years trying to conceive, 4 years MAR treatments and examination, 3 natural pregnancies ending with 3 miscarriages
Background : Both infertiles with low ovarian reserve, hyper-activation of the immune system* for Juliette & high percentage of atypical shaped sperm for Joachim
MAR treatments : Oral stimulation, 4 ICSI
Next step : Treatments with egg donation abroad (costs : 10 000 euros)
Financial expenses not reimbursed : 15 000 euros -) psychological counselling and holistic support for both (11 000 euros) & medical examination (4000 euros)
Medical condition : Depression, hospital stay and medical leave after miscarriages, medical abuse
Social life : Isolation, loss of friends, not participating to family events
Working situation : Fixed term contracts and unemployment since 2013 to adapt to treatments
Indirect costs : Loss of wage & career disruption for Juliette
Project abandoned : Real estate acquisition
Discriminations : 1) No access to ICSI with egg donation in France 2) Medical fees not reimbursed : endometrial biopsy, sperms examination, psychological counselling 3) Long career disruption for Juliette

Example 2:
Marta & Kuba, Poland

7 years of treatment, 3 ivf (two of them NOT reimbursed)
2 children

Discrimination:
– despite national health insurance – diagnose, tests and treatment not reimbursed;
– legal regulations of 2015 forces them to donate their
remaining embryos;
– legal regulations of 2015 bans them from non-anonymous donation of their remaining embryos;
– legal regulations of 2015 bans them from destroying their remaining embryos or donating them for scientific research.

 
Category: Fertility Europe
 
Apr 18

EPAF launch report

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On 28 March 2017, MEP Norica Nicolai (ALDE), hosted a launch event for the first Policy Audit on Fertility – Analysis of 9 EU Countries. The report, sponsored by Merck, was written by Fertility Europe (FE) and the European Society of Human Reproduction and Embryology (ESHRE), resulted in a constructive roundtable discussion addressing not only the challenges surrounding infertility, but also what can be done to solve them.

“To talk about fertility is to talk about life, it is to talk about family.” – MEP Valcárcel Siso

“The idea of family has changed. Science and society are evolving and the law needs to keep up. The role of the MEPs is to find solutions to citizens’ problems.” – MEP Beatriz Becerra Basterrechea

“Limitations [in access to ART] are only justified when they improve safety, efficacy, fairness. They are not justified when they create discrimination regarding life choices like postponing parenthood.” – Monika Bulmańska-Wingett, Fertility Europe

Meeting report from FEChair
 
Category: Fertility Europe
 
Apr 01

Deputy Member of Executive Committee election

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Fertility Europe needs another Deputy Member who would complete and reinforce the Executive Committee. This election is to take place during Fertility Europe Council Meeting in Geneva, 3rd July 2017. The term of the new deputy will only last one year until 2018, when the new Executive Committee will be elected. So this is a great opportunity to experience the work in ExCo without the need to commit for 3 years of full term.

Each Effective Member association is invited to propose up to five (5) candidates for the ExCo deputy member position. The last day to send proposals is 4th May 2017 and we kindly ask you to send them to Klaudija Kordic (klaudija(at)fertilityeurope.eu), the Secretary of the ExCo with the copy to Office Manager (office(at)fertilityeurope.eu).

The Chairperson will send a full list of all proposed candidates to all members by electronic means by 3rd June 2017.

Executive Committee is looking forward to receiving your proposals and please contact Office Manager if you need any more information.

 
Category: Fertility Europe
 
Mar 31

Fertility Europe in the European Parliament

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European Policy Audit on Fertility has been presented in the European Parliament by ESHRE and Fertility Europe. Our host MEP Norica Nicolai, MEP Beatriz Beccerra Basterrechea and MEP Ramón Luis Valcárcel Siso gave us a lot of hope that there is political will to establish safe and equal access to treatment for 25 million of people facing infertility in Europe.

Louise Joy Brown, first IVF conceived baby, was with us to support the cause!

The full text of EPAF can be read on our website and more information and videos from the event will be published soon.

 
 
Feb 19

The European Policy Audit on Fertility (EPAF) is a joint project of FE and ESHRE conducted under unrestricted grant from Merck. It is supposed to serve to collect, assess and compare up-to date information about the national fertility spectrum and policies in pre-selected European countries, identify current needs and potentially develop policy recommendations targeted at EU and national policy makers. In addition to an overview of key facts and statistics related to fertility across the 28 members of the European Union, the EPAF will include a detailed overview of policies and regulations in nine EU member states: Czech Republic, France, Germany, Italy, Poland, Romania, Spain, Sweden and UK.

 #infertilitymattersEU

 
 
Dec 24

Happy holidays!

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happy holidays

 
Category: Fertility Europe
 
Nov 25

ESHRE and Fertility Europe together in a working session

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A very harmonious and successful meeting between #FertilityEurope ExCo and #ESHRE ExCo today in Brussels:

fe1

We will come back with details soon.

 
 

ExCo meetings

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Today in Brussels, Fertility Europe ExCo working on our advocacy plans for 2017:

fe1

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fe2

 
 
Nov 07

Let’s break the silence!

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A selection of the pictures of the action I am one in 5. Let’s break the silence and talk about infertility”, within #EuropeanFertilityWeek.

 
 
Nov 06

Fertility Show London 2016

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In UK, the National Fertility Awareness Week finished with Fertility Show London 2016.
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Susan, Fertility Network UK Chief Executive  and member of the FE Working Group MORE, and Louise Brown, the first IVF baby, at Fertility Show London 2016:
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louise

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Q&A session within the Fertility Show:

susanuk

 
 

EFW in Romania

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The Romanian infertility NGO Asociatia SOS Infertilitatea organised the 5th edition of the National Infertility Awareness Week, part of the #EuropeanFertilityWeek.

This year’s efforts were focused in Romania on advocacy and patients’ rights to receive the treatment guaranteed by law.

SOS Infertilitatea had a meeting with the Ministry of Health decision makers to discuss In Vitro Fertilisation Sub-Programme helping the infertile patients in Romania.

Here is the agenda of the Romanian campaign:

Romania – European Fertility Week events 2016 from FertilityEurope

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The Romanian members were also very active on social media with campaigns I am 1 in 5” and the anti-stigma action „IVF mum and proud of it”, and also organised on Facebook a live Q&A session for patients.

The European Fertility Week finished in Romania with ‘WE WANT CHILDREN’ meetings of SOS Infertilitatea members with friends and sympathizers in Bucharest and Iasi, discussing and advising on fertility/infertility, assisted reproductive technology and adoption. A part of the SOS Infertilitatea volunteers say hello from Bucharest to Fertility Europe colleagues:

bucharest

 
 

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